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    <loc>https://www.porphyriacanada.ca/stories/kelly</loc>
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      <image:title>Stories - Kelly our Vice-President has VP - “I thought it would be an easy road to good health now that we could put a name to what I had.”</image:title>
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    <loc>https://www.porphyriacanada.ca/stories/jean-baptiste</loc>
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    <lastmod>2023-01-12</lastmod>
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      <image:title>Stories - Jean-Baptiste’s EPP - “When I was a kid, I would have been so happy if at least one person could simply and fully understand me.”</image:title>
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    <loc>https://www.porphyriacanada.ca/stories/jean</loc>
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    <lastmod>2023-01-12</lastmod>
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      <image:loc>https://images.squarespace-cdn.com/content/v1/622f950bf4777b09d2f7bfaf/fc80d622-e99b-4b7c-a0ba-7c62be34ee7d/Jean+Brando.jpeg</image:loc>
      <image:title>Stories - Jean has AIP</image:title>
      <image:caption>“I’ve been managing my porphyria for decades now and sometimes I was down for the count, but it hasn’t stopped me.”</image:caption>
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    <loc>https://www.porphyriacanada.ca/stories/lois</loc>
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    <lastmod>2023-01-12</lastmod>
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      <image:title>Stories - Lois lives with HCP - “I was sent home to cope and deal alone with my acute symptoms. There was nowhere to turn for porphyria support and education. I felt helpless and hopeless.”</image:title>
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    <lastmod>2023-01-12</lastmod>
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      <image:title>Stories - Leslie lives with EPP - “Patients with EPP are very sensitive to hot and cold. It feels like we are being burnt from the inside out.”</image:title>
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    <loc>https://www.porphyriacanada.ca/stories/ava</loc>
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    <lastmod>2023-01-12</lastmod>
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      <image:title>Stories - Ava’s Story - “We raised $700 for the Knights of Columbus Christmas hampers”</image:title>
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  <url>
    <loc>https://www.porphyriacanada.ca/volunteer</loc>
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    <lastmod>2026-03-25</lastmod>
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    <loc>https://www.porphyriacanada.ca/volunteer/board-73z47</loc>
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    <priority>0.5</priority>
    <lastmod>2026-03-25</lastmod>
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      <image:loc>https://images.squarespace-cdn.com/content/v1/622f950bf4777b09d2f7bfaf/5457b8ed-6756-4207-81db-ce627f9a14a2/Untitled+design+%2838%29.png</image:loc>
      <image:title>Volunteer - Join CAP’s Board of Directors - We are looking for passionate, committed, qualified people to join our Board of Directors for the 2026-2028 term to help lead our organization as we continue to support the Canadian Porphyria community.</image:title>
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    <loc>https://www.porphyriacanada.ca/volunteer/epp</loc>
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    <lastmod>2023-05-19</lastmod>
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      <image:title>Volunteer - Advocate of EPP Treatments - New treatments for EPP are being developed (MT-7117 and Bitopertin) and approved (Scenesse). We need your help to ensure that Canadians can get access to these treatments.</image:title>
      <image:caption>You can support these efforts by helping us to: Collect patient’s experiences and creating submissions for approval processes Build a network of doctors who treat EPP Raise awareness of porphyria Sharing your experiences with elected officials Contact us to discuss how you can be involved!</image:caption>
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    <loc>https://www.porphyriacanada.ca/news</loc>
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    <lastmod>2026-03-04</lastmod>
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    <loc>https://www.porphyriacanada.ca/news/rare-sun-disorder-kept-saskatoon-man-indoors-for-decades-until-a-clinical-trial-changed-everything-globe-and-mail</loc>
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    <lastmod>2026-03-04</lastmod>
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      <image:title>News - Rare sun disorder kept Saskatoon man indoors for decades until a clinical trial changed everything (Globe and Mail) - Make it stand out</image:title>
      <image:caption>(Travis Reddaway/CBC)</image:caption>
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    <loc>https://www.porphyriacanada.ca/news/85eutkz5jp7592pxdh6c0udoh7mm2r</loc>
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    <lastmod>2026-01-31</lastmod>
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      <image:title>News - Message from CAP’s President - Michelle Capon CAP President</image:title>
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    <loc>https://www.porphyriacanada.ca/news/spooky-porphyria-facts-social-media-campaign</loc>
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    <lastmod>2025-10-31</lastmod>
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    <loc>https://www.porphyriacanada.ca/news/fillable-ahp-emergency-wallet-card</loc>
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    <lastmod>2025-09-18</lastmod>
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      <image:title>News - Fillable AHP Emergency Wallet Card (w/ Instructions) - Make it stand out</image:title>
      <image:caption>Whatever it is, the way you tell your story online can make all the difference.</image:caption>
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    <loc>https://www.porphyriacanada.ca/news/study-for-youth-with-a-rare-disease</loc>
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    <lastmod>2025-09-04</lastmod>
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      <image:loc>https://images.squarespace-cdn.com/content/v1/622f950bf4777b09d2f7bfaf/bb4c95b2-7ccd-4d70-b733-39e3fb764bf5/Flyer+2025-08-31+184031.png</image:loc>
      <image:title>News - Study for Youth with a Rare Disease - Make it stand out</image:title>
      <image:caption>Whatever it is, the way you tell your story online can make all the difference.</image:caption>
    </image:image>
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    <loc>https://www.porphyriacanada.ca/news/a-weekend-of-light-free-joy</loc>
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    <lastmod>2025-07-30</lastmod>
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    <loc>https://www.porphyriacanada.ca/news/epp-emergency-treatment-cards-now-available-7wrl9</loc>
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    <lastmod>2025-07-09</lastmod>
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      <image:title>News - Emergency EPP Treatment Cards Now Available - Make it stand out</image:title>
      <image:caption>Whatever it is, the way you tell your story online can make all the difference.</image:caption>
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    <loc>https://www.porphyriacanada.ca/news/emergency-treatment-cards-now-available</loc>
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    <lastmod>2025-07-09</lastmod>
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      <image:title>News - Emergency AHP Treatment Cards Now Available - Make it stand out</image:title>
      <image:caption>Whatever it is, the way you tell your story online can make all the difference.</image:caption>
    </image:image>
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  <url>
    <loc>https://www.porphyriacanada.ca/news/the-painful-truth-about-living-with-erythropoietic-protoporphyria</loc>
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    <lastmod>2025-06-24</lastmod>
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    <loc>https://www.porphyriacanada.ca/news/porphyria-advocacy-around-the-world</loc>
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    <lastmod>2025-05-31</lastmod>
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    <loc>https://www.porphyriacanada.ca/news/cap-on-rarely-discussed-podcast</loc>
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    <lastmod>2025-07-15</lastmod>
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      <image:title>News - CAP on “Rarely Discussed” Podcast - Make it stand out</image:title>
      <image:caption>Whatever it is, the way you tell your story online can make all the difference.</image:caption>
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    <loc>https://www.porphyriacanada.ca/news/message-from-caps-president-michelle-capon-wsmz5</loc>
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    <lastmod>2025-05-03</lastmod>
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  <url>
    <loc>https://www.porphyriacanada.ca/news/now-available-aip-physician-education-slides</loc>
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    <lastmod>2025-04-05</lastmod>
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    <loc>https://www.porphyriacanada.ca/news/message-from-caps-president-michelle-capon</loc>
    <changefreq>monthly</changefreq>
    <priority>0.5</priority>
    <lastmod>2025-05-03</lastmod>
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    <loc>https://www.porphyriacanada.ca/news/kelly-burns-tells-her-story-to-ctv</loc>
    <changefreq>monthly</changefreq>
    <priority>0.5</priority>
    <lastmod>2025-01-22</lastmod>
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  <url>
    <loc>https://www.porphyriacanada.ca/news/message-from-the-president</loc>
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    <lastmod>2025-01-13</lastmod>
  </url>
  <url>
    <loc>https://www.porphyriacanada.ca/news/listen-to-derry-on-apfs-rarely-discussed</loc>
    <changefreq>monthly</changefreq>
    <priority>0.5</priority>
    <lastmod>2024-11-07</lastmod>
    <image:image>
      <image:loc>https://images.squarespace-cdn.com/content/v1/622f950bf4777b09d2f7bfaf/6806eefc-2d3c-480a-8144-28479f2698b0/Heading+%281%29.png</image:loc>
      <image:title>News - Listen to Derry Wilcox on APF’s “Rarely Discussed - Make it stand out</image:title>
      <image:caption>Whatever it is, the way you tell your story online can make all the difference.</image:caption>
    </image:image>
  </url>
  <url>
    <loc>https://www.porphyriacanada.ca/news/icpp2024</loc>
    <changefreq>monthly</changefreq>
    <priority>0.5</priority>
    <lastmod>2024-11-28</lastmod>
    <image:image>
      <image:loc>https://images.squarespace-cdn.com/content/v1/622f950bf4777b09d2f7bfaf/58576359-b617-4abb-8b1f-2dc9947ca8ae/CAPatICPP.jpg</image:loc>
      <image:title>News - Canadian Association for Porphyria attends the International Congress of Porphyrins and Porphyrias in Pamplona, Spain - Make it stand out</image:title>
      <image:caption>(L to R) CAP members Derry Wilcox (Treasurer), Jeannie Reimer (Secretary) and Michelle Capon (President) at the International Congress of Porphyrins and Porphyrias in Pamplona, Spain.</image:caption>
    </image:image>
    <image:image>
      <image:loc>https://images.squarespace-cdn.com/content/v1/622f950bf4777b09d2f7bfaf/07c4dae3-949e-48de-93cf-4ba5ecc116a1/GPAC+at+ICPP+2024.jpg</image:loc>
      <image:title>News - Canadian Association for Porphyria attends the International Congress of Porphyrins and Porphyrias in Pamplona, Spain - We met in person with our fellow patient groups from around the world and discuss global priorities from the porphyria community at a meeting of the Global Porphyria Advocacy Coalition (GPAC).</image:title>
      <image:caption>GPAC Meeting at ICPP 2024</image:caption>
    </image:image>
    <image:image>
      <image:loc>https://images.squarespace-cdn.com/content/v1/622f950bf4777b09d2f7bfaf/12987d2a-716c-4eb9-87b4-c0840e290aa0/Dickey+presenting.jpg</image:loc>
      <image:title>News - Canadian Association for Porphyria attends the International Congress of Porphyrins and Porphyrias in Pamplona, Spain - Research that will make a difference in porphyria care and diagnosis was presented. We were particularly interested in research on:</image:title>
    </image:image>
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    <loc>https://www.porphyriacanada.ca/news/patientvoicefeature</loc>
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    <lastmod>2024-09-08</lastmod>
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      <image:title>News - EPP Story Featured on Patient Voice - Make it stand out</image:title>
      <image:caption>Screen grab of CAP President Michelle Capon’s story on Patient Voice</image:caption>
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