Events and Meetings

Meet others who understand what you’re going through. Hear from special guests who can help you navigate your porphyria journey.

There are no events scheduled at this time. Please check back often to find out how you can get involved.

PAST EVENTS

Mental Health Fireside Chat

Date: June 14, 2025
Time: 12:00 p.m. MT (2:00 p.m. ET)
Location: Zoom Meeting

Attendance is free but registration is required to receive the Zoom access link.

Register

Turn Canada #PurpleforPorphyria
May 18, 2025

Join the porphyria community on May 18, 2025, as we light up Canada #PurpleForPorphyria! Together with patients, caregivers, advocates, and friends, we’ll illuminate monuments and landmarks across the globe to shine a spotlight on porphyria awareness. Our Vice President, Kelly Burns, is working tirelessly to illuminate some of Canada’s most iconic landmarks in support of this important cause. Here in Canada, we’re working tirelessly to make sure our nation glows purple in support of this important cause. Let’s come together to spread knowledge, inspire change, and show the strength of our incredible community!

Check back often to see the latest locations committed to turning #PurpleForPorphyria

Light up Locations

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Light up Locations *

    • Victoria ~ BC Legislature

    • Vancouver~ BC Place

    • Vancouver ~ Vancouver Convention Centre

    • Vancouver ~ Olympic Cauldron

    • Burnaby ~ City Hall & Guideway

    • Nanaimo ~ City Of Nanaimo Bastion

    • Victoria ~ Victoria City Hall

    • White Rock ~ White Rock Pier

    • Trail ~ Victoria Street Bridge

    • Ladysmith ~ Town of Ladysmith

    • Saanich ~ Saanich Municipal Hall

    • Vancouver ~ Sails Of Light

    • Vancouver ~ Science World

    • Vancouver ~ City Hall

    • Vancouver ~ Burrard Street Bridge

    • Whistler ~ Fitzsimmons Bridge

    • Esquimalt ~ Archie Browning Arena

    • Esquimalt ~ Water park

    • Calgary ~ Calgary Tower

    • Calgary ~ Reconciliation Bridge May 14

    • Lethbridge ~ Lethbridge City Hall

    • Red Deer ~ Red Deer City Hall

    • Fort McMurray ~ Saline Pedestrian Bridge

    • Edmonton ~ High Level Bridge May 15

    • Moosejaw ~ Moosejaw City Hall Clock Tower May 16-19 will be lit Pink

    • Regina ~ City Hall May 18

    • Saskatoon - Sasktel Centre May 18

    • Saskatoon ~ TCU Place

    • Selkirk ~ Selkirk Water Tower

    • Brampton ~ Clock Tower 18-19th

    • Belleville ~ Bridge Fire Station 1 Gardens 12-18th

    • Belleville ~ Belleville Sign 12-18th

    • Belleville ~ Bridge Street 12-18th

    • Oakville ~ City Of Oakville Town Hall

    • Fort Erie/Buffalo New York ~ Peace Bridge

    • Burlington ~ Burlington Street Pier

    • Kingston ~ Kingston City Hall

    • Mississauga ~ Clock Tower May 20th

    • Toronto ~ CN Tower https://www.cntower.ca/live-views

    • London ~ London City Hall

    • London ~ JA Taylor Building at Wellington and Dundas

    • Hamilton ~ Hamilton sign

    • Waterloo ~ Uptown

    • Guelph ~ Market Square

    • London ~ RBC Building

    • Kitchener ~ The Museum

    • Vaughan ~ City of Vaughan

    • Collingwood ~ Town Clock

    • Windsor ~ Caesars Windsor

    • Sarnia ~ City Hall

    • Sarnia ~ Sarnia sign

    • Sarnia ~ Waterfront

    • Barrie ~ I ❤️ Barrie sign May 16-19

    • Ottawa ~ Ottawa sign Byward Market

    • Kawartha Lakes ~ City Hall

    • Toronto ~ Toronto sign Nathan Phillips Square

    • Newmarket ~ Fred A. Lundy Bridge May 20

    • Niagara Falls ~ Niagara Falls 10pm EST https://www.earthcam.com/canada/niagarafalls/?cam=niagarafalls_str

    • Ottawa ~ Rogers Centre Ottawa

    • Montréal ~ La Grande Roue De Montréal

    • Moncton ~ Moncton City Hall

    • Moncton ~ Downing Street

    • Moncton ~ Downtown Place

    • Miramichi ~ Queen Elizabeth Park

    • Fredericton ~ City Hall

    • ST.John’s ~ ST.John’s City Hall May 16-19th

    • Gander ~ Gander Town Hall May 16-19th

    • ST.John’s ~ Confederation Building May 16

Hope Jam 2025
May 24th @ 5:00 p.m.

Tofield Hotel (Tofield, Alberta)
$15 Cover Charge

Hope Jam is an annual music and arts event that has been raising funds for the Canadian Association for Porphyria/ Association de Canadienne Porphyrie since 2014 (with no events in 2020-2022).

This event has raised nearly $25,000 to help support Canadians with the rare metabolic disorder Porphyria.

Contact us for more information

February 28, 2025, is Rare Disease Day, a time to raise awareness and promote understanding of porphyria and all rare diseases worldwide.

We invite everyone to join the effort by lighting their homes in Rare Disease Day colors on February 28. Meanwhile, our Vice President, Kelly Burns, is working tirelessly to illuminate some of Canada’s most iconic landmarks in support of this important cause.

Stay tuned to this page for a full list of locations that will #LightUpForRare this February!

Watch Canada #LightUpForRare

Light up Locations

Turn Canada #PurpleforPorphyria 2024

On May 18, 2024, we joined our friends around the world to raise awareness of porphyria and advocate for greater access to diagnosis and treatment.

Many of our Canadian landmarks turned purple too!

Light up locations

    • Burnaby: City Hall and Guideway, May 18

    • Coquitlam: Lafarge Lake & along Pinetree Way May 15

      Duncan: World’s Largest Hockey Stick Cowichan May 18

    • Esquimalt: Archie Browning Sports Centre May 18

    • Esquimalt: Waterpark May 18

    • Nanaimo: City of Nanaimo Bastion May 18

    • Port Coquitlam: City Hall on May 18

    • Saanich: City Hall May 18

    • Surrey: Civic Plaza, May 18

    • Trail: Victoria Street Bridge, May 18

    • Vancouver: BC Place May 18

    • Vancouver: City Hall May 18

    • Vancouver: The Burrard Street Bridge May 18

    • Vancouver: Convention Centre May 18

    • Vancouver: Olympic Arms of the Cauldron

    • Vancouver: Science World, May 18

    • Vancouver: Sails of Light May 18

    • Vancouver: Bloedel Conservatory May 19

    • Vancouver: Pacific Coliseum May 18

    • Victoria: B.C. Legislature May 18

    • Victoria: City Hall May 18

    • Whistler: Fitzsimmons Bridge May 18

    • Calgary: Reconciliation Bridge, May 19

    • Edmonton: High Level Bridge on May 18

    • Fort MacMurray: Saline Pedestrian Bridge May 18

    • Grande Prairie: Centre 2000 Sundial May 18

    • Lethbridge: City Hall, May 18

    • Red Deer: City Hall May 18

    • Sylvan Lake: Lighthouse, May 18

    • Moosejaw: Sask Clock Tower will be LIT PINK May 17-21

    • Regina: City Hall May 17-20

    • Saskatoon: Sasktel Centre on May 18

    • Saskatoon: TCU Place May 18

  • •Selkirk: Selkirk Water Tower May 18

    •Winnipeg: Esplanade Riel Bridge May 18

    •Winnipeg: Winnipeg Sign May 18

    • Barrie: Love Barrie Sign May 18

    • Belleville: Mayor Proclamation only May 18

    • Brampton: Clock Tower May 18

    • Burlington: Brant Street Pier May 18

    • Chatham-Kent: Civic Centre Atrium May 17-20

    • Collingwood: Clock Tower & Proclamation May 18

    • Fort Erie/Buffalo NY: Peace Bridge May 18

    • Guelph: Market Square May 18

    • Hamilton: Hamilton Sign May 18

    • Kingston: City Hall May 19

    • Kitchener: Carl Zehr Square May 18

    • Kitchener: City Hall May 18

    • Kitchener: THE MUSEUM May 18

    • London: City Hall May 18

    • London: JA Taylor building May 18

    • London: Canada Life May 18

    • London: RBC London Place May 18

    • London: Sifton properties on Dufferin May 18

    • Mississauga: Civic Centre Clock Tower May 18

    • Newmarket: Fred. A Lundy Bridge May 17

    • Newmarket: Riverwalk Commons May 17

    • Niagara Falls: May 18 10pm EST

    • Oakville: Town Hall May 18

    • Ottawa: Ottawa Byward Market Sign May 18

    • Ottawa: Shaw Centre May 18

    • Peterborough: City Hall May 18

    • Sarnia: City Hall May 18

    • Toronto: CN Tower May 18

    • Toronto: Toronto Sign May 18

    • Vaughan: City Hall May 18

    • Waterloo: Uptown May 18

    • Windsor: Caesars Windsor May 18

    • Montreal: La Grande Roue May 18

    • Montreal: The Montreal Tower May 18

    • Fredericton: City Hall May 18

    • Moncton- Downing Street May 18-19

    • Moncton: Downtown Place May 18-19

    • Moncton: Avenir Centre May 18-19

    • Moncton: Ian Fowler Oval, May 18-19

    • Charlottetown: City Hall Tower May 18

    • Summerside: City Hall May 18

    • New Glasgow: Glasgow Square Theatre May 18

    • Ganders: Town Hall May 17-18

    • Mount Pearl: City Hall on May 18

    • ST Johns: Town Hall March 20-26

    • ST Johns: Confederation Building May 18

Global Porphyria Day 2024
EPP Patient Day- March 2023
Acute Porphyria in Nova Scotia- June 2021
Patient Gathering – April 2022
Advocating for Yourself in Health Care – June 2022
Hope Jam 2024

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