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Understanding Porphyria

Acute Porphyrias

Porphyria Cutanea Tarda (PCT)

Protoporphyrias (EPP/XLP)

Congenital Erythropoietic Porphyria (CEP)

One On One Support

Accessing Treatments

Supporting someone with porphyria

Global Porphyria Day

Rare Disease Day

Stories | Histoires

Become A Member | Devenez un member

Newsletter | Infolettre

Participate in Research

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Mission and History

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Understanding Porphyria

Acute Porphyrias

Porphyria Cutanea Tarda (PCT)

Protoporphyrias (EPP/XLP)

Congenital Erythropoietic Porphyria (CEP)

One On One Support

Accessing Treatments

Supporting someone with porphyria

Global Porphyria Day

Rare Disease Day

Stories | Histoires

Become A Member | Devenez un member

Newsletter | Infolettre

Participate in Research

Store | Boutique

Mission and History

SEARCH

Folder: Porphyria | Porphyrie

Understanding Porphyria

Acute Porphyrias

Porphyria Cutanea Tarda (PCT)

Protoporphyrias (EPP/XLP)

Congenital Erythropoietic Porphyria (CEP)

Folder: Support

One On One Support

Accessing Treatments

Supporting someone with porphyria

Global Porphyria Day

Rare Disease Day

Stories | Histoires

Folder: Get Involved | S'engager

Become A Member | Devenez un member

Newsletter | Infolettre

Participate in Research

Store | Boutique

Folder: About Us | À propos

Mission and History

SEARCH

One-On-One Support/

Support individuel

Do you have questions? Please contact us and we’ll try to help.

Avez-vous des questions? Contactez-nous et nous tenterons de vous aider.

Canadian Association for Porphyria

Phone 1-647-366-7609

Medical Disclaimer: Care has been taken to ensure that the information on this website is accurate at the time of publication. This information is, however, intended for general guidance only and is not meant to substitute consultation from a recognized health professional. The Canadian Association for Porphyria/Association Canadienne de Porphyrie disclaims for itself and for the author of this information, all responsibility for any mis-statements or for consequences of actions taken by any person while acting on information contained herein. Physicians and patients must make their own decisions about therapy according to the individual circumstances of each case.

Avis de non-responsabilité médicale : Nous avons veillé à ce que les informations contenues dans ce site Web soient exactes au moment de leur publication. Toutefois, ces informations ne sont données qu'à titre indicatif et ne remplacent pas la consultation d'un professionnel de la santé reconnu. La Canadian Association for Porphyria/Association Canadienne de Porphyrie décline, pour elle-même et pour l'auteur de ces informations, toute responsabilité pour toute déclaration erronée ou pour les conséquences des actions entreprises par toute personne agissant sur la base des informations contenues dans ce site. Les médecins et les patients doivent prendre leurs propres décisions thérapeutiques en fonction des circonstances individuelles de chaque cas.