Porphyria Advocacy Around the World

In honour of Global Porphyria Day 2025, the Global Porphyria Advocacy Coalition shared a powerful video that brings together voices from porphyria communities around the world.

This heartfelt film features representatives from our incredible Patient Advocacy Groups sharing why they dedicate their energy and passion to advocating for those affected by porphyria.

CAP’s President, Michelle Capon, represented Canada’s porphyria community in offering a heartfelt message of hope, unity, and resilience around the world.

Full video including messages from porphyria advocates around the world.