Join CAP’s Board of Directors

 

Canadian Association for Porphyria is looking for committed and passionate members to help make a difference in the lives of Canadians affected by porphyria!

If you, or someone you know, would like to be a part of shaping CAP/ACP’s future, we invite you to submit an application for the 2024-2026 term.

What to know more? Check out our FAQ’s below or contact us.

 

Frequently Asked Questions

  • Directors are elected each June at our Annual General Meeting for a two year term.

    • Total time commitment is about 5 hours per month.

    • The Board meets 10 times a year, and each meeting is about an hour long over Zoom.

    • Every Director is also asked to participate on a committee and/ or take on additional tasks between meetings.

  • At CAP our Board members are the backbone of the organization. They:

    • Identify issues facing people affected by porphyria and work together to come up with solutions

    • Set the short, medium and long term goals of the organization, and helps make those goals a reality.

    • Attend meetings and events as a representative of CAP.

    • Are in a position of trust with our community and has legal responsibility for the organization.

  • It is an exciting time to be involved. Right now we are working on:

    • Creating opportunities to connect for people and families living with porphyria

    • Improving access to information and resources for patients and their physicians

    • Creating treatment guidelines for porphyria

    • Advocating for access to treatments for porphyria

    • Increasing awareness of porphyria

  • Board experience is helpful, but not necessary. We are looking for people:

    • With a commitment to CAP/ACP and its mission- this is essential.

    • From all regions of Canada, particularly Atlantic Canada, Quebec, BC and the North.

    • Who have a connection to, or interest in, porphyria

    • With experience and knowledge they can contribute to the governance of CAP/ACP. Experience with marketing and communications, health care and research, fund development, nonprofit governance, finances and program development would all be helpful.

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Advocate of EPP Treatments