Study for Youth with a Rare Disease
(Posting on behalf of Inform Rare)
ARE YOU A YOUTH WITH A RARE DISEASE, OR A CAREGIVER TO A CHILD OR YOUTH WITH A RARE DISEASE?
WHO ARE WE LOOKING FOR?
Youth aged 14-20 years who live in Canada and have a rare disease diagnosis
Caregivers residing in Canada (for example, parents) to children aged 0-18 years with rare diseases
Have participated in or been invited to participate in a clinical trial in the past
Be able to join an English-speaking focus group
